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Cultural Approaches to Pediatric Palliative Care in Central Massachusetts: Palliative Care Resources

This subject guide is a collaborative project with the Children's Medical Center Pediatric Palliative Care Team, the Lamar Soutter Library, and Interpreter Services.

Pediatric Palliative Care Books Available in the Lamar Soutter Library

Palliative Care Articles

Burns, J., & Rushton, C. (2004). End-of-life care in the pediatric intensive care unit: Research review and recommendations. Critical Care Clinics, 20(3), 467-85, x.

Carter, B. S., Howenstein, M., Gilmer, M. J., Throop, P., France, D., & Whitlock, J. A. (2004). Circumstances surrounding the deaths of hospitalized children: Opportunities for pediatric palliative care. Pediatrics, 114(3), e361-6. 

Committee on Bioethics and Committee on Hospital Care,. (2000). Palliative care for children. Pediatrics, 106(2), 351-357.

Harper, J., Hinds, P. S., Baker, J. N., Hicks, J., Spunt, S. L., & Razzouk, B. I. (2007). Creating a palliative and end-of-life program in a cure-oriented pediatric setting: The zig-zag method. Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses, 24(5), 246-254. doi:10.1177/1043454207303882

Himelstein, B. (2005). Palliative care in pediatrics. Anesthesiology Clinics of North America, 23(4), 837-56, xi. 

Himelstein, B. (2006). Palliative care for infants, children, adolescents, and their families. Journal of Palliative Medicine, 9(1), 163-181.

Himelstein, B., Hilden, J., Boldt, A., & Weissman, D. (2004). Pediatric palliative care. New England Journal of Medicine, the, 350(17), 1752-1762.

Leuthner, S. R. (2004). Palliative care of the infant with lethal anomalies. Pediatric Clinics of North America, 51(3), 747-59, xi. doi:10.1016/j.pcl.2004.01.006

Levetown, M., & American Academy of Pediatrics Committee on Bioethics. (2008). Communicating with children and families: From everyday interactions to skill in conveying distressing information. Pediatrics, 121(5), e1441-60. doi:10.1542/peds.2008-0565

Liben, S., Papadatou, D., & Wolfe, J. (2008). Paediatric palliative care: Challenges and emerging ideas. Lancet, 371(9615), 852-864. doi:10.1016/S0140-6736(07)61203-3

McSherry, M., Kehoe, K., Carroll, J., Kang, T., & Rourke, M. (2007). Psychosocial and spiritual needs of children living with a life-limiting illness. The Pediatric Clinics of North America, 54(5), 609-29, ix.

Meert, K., Eggly, S., Pollack, M., Anand, K. J. S., Zimmerman, J., Carcillo, J., . . . Nicholson, C. (2008). Parents' perspectives on physician-parent communication near the time of a child's death in the pediatric intensive care unit. Pediatric Critical Care Medicine, 9(1), 2-7.

Meyer, E., Ritholz, M., Burns, J., & Truog, R. (2006). Improving the quality of end-of-life care in the pediatric intensive care unit: Parents' priorities and recommendations. Pediatrics, 117(3), 649-657.

Morstad Boldt, A., Yusuf, F., & Himelstein, B. P. (2006). Perceptions of the term palliative care. Journal of Palliative Medicine, 9(5), 1128-1136. doi:10.1089/jpm.2006.9.1128

Robinson, M. R., Thiel, M. M., Backus, M. M., & Meyer, E. C. (2006). Matters of spirituality at the end of life in the pediatric intensive care unit. Pediatrics, 118(3), e719-29.

Scott, L. D. (1998). Perceived needs of parents of critically ill children. Journal of the Society of Pediatric Nurses : JSPN, 3(1), 4-12.

Sourkes, B., Frankel, L., Brown, M., Contro, N., Benitz, W., Case, C., . . . Sunde, C. (2005). Food, toys, and love: Pediatric palliative care. Current Problems in Pediatric and Adolescent Health Care, 35(9), 350-386.

Turner, H. N. (2010). Parental preference or child well-being: An ethical dilemma. Journal of Pediatric Nursing, 25(1), 58-63.

Vats, T. S., & Reynolds, P. D. (2006). Pediatric hospital dying trajectories: What we learned and can share. Pediatric Nursing, 32(4), 386-392.