Cultural Approaches to Pediatric Palliative Care in Central Massachusetts: Culturally Sensitive Palliative Care

Braun K., Nichols, R. (1997)  Death and dying in four Asian American cultures:  A descriptive study.  Death Studies. 21, 327-359.

Brody, H., & Hunt, L. M. (2005). Moving beyond cultural stereotypes in end-of-life decision making. American Family Physician, 71(3), 429-430.

Clark, K., & Phillips, J. (2010). End of life care - the importance of culture and ethnicity. Australian Family Physician, 39(4), 210-213.

Crawley, L. M. (2005). Racial, cultural, and ethnic factors influencing end-of-life care. Journal of Palliative Medicine, 8 Suppl 1, S58-69. doi:10.1089/jpm.2005.8.s-58

Crawley, L. M., Marshall, P. A., Lo, B., Koenig, B. A., & End-of-Life Care Consensus Panel. (2002). Strategies for culturally effective end-of-life care. Annals of Internal Medicine, 136(9), 673-679.

Davies, B., Contro, N., Larson, J., & Widger, K. (2010). Culturally-sensitive information-sharing in pediatric palliative care. Pediatrics, 125(4), e859-65. doi:10.1542/peds.2009-0722

Davies, B., Larson, J., Contro, N., Reyes-Hailey, C., Ablin, A. R., Chesla, C. A., . . . Cohen, H. (2009). Conducting a qualitative culture study of pediatric palliative care. Qualitative Health Research, 19(1), 5-16. doi:10.1177/1049732308327346

Hexem, K. R., Mollen, C. J., Carroll, K., Lanctot, D. A., & Feudtner, C. (2011). How parents of children receiving pediatric palliative care use religion, spirituality, or life philosophy in tough times. Journal of Palliative Medicine, 14(1), 39-44. doi:10.1089/jpm.2010.0256

Mazanec, P., & Tyler, M. K. (2003). Cultural considerations in end-of-life care: How ethnicity, age, and spirituality affect decisions when death is imminent. The American Journal of Nursing, 103(3), 50-8; quiz 59.

Mitchell, A. M., Gale, D. D., Matzo, M. L., McDonald, M. C., & Gadmer, N. (2002). Critique of transcultural practices in end-of-life clinical nursing practice. Nursing Forum, 37(4), 24-31.

Pergert, P., Ekblad, S., Enskar, K., & Bjork, O. (2008). Bridging obstacles to transcultural caring relationships--tools discovered through interviews with staff in pediatric oncology care. European Journal of Oncology Nursing : The Official Journal of European Oncology Nursing Society, 12(1), 35-43. doi:10.1016/j.ejon.2007.07.006

Rosa, U. W. (2006). Impact of cultural competence on medical care: Where are we today? Clinics in Chest Medicine, 27(3), 395-9, v. doi:10.1016/j.ccm.2006.04.011

Sarnaik, A. P., Daphtary, K., & Sarnaik, A. A. (2005). Ethical issues in pediatric intensive care in developing countries: Combining western technology and eastern wisdom. Indian Journal of Pediatrics, 72(4), 339-342.

Sartori, P. (2010). Spirituality 1: Should spiritual and religious beliefs be part of patient care? Nursing Times, 106(28), 14-17.

Searight, H. R., & Gafford, J. (2005). Cultural diversity at the end of life: Issues and guidelines for family physicians. American Family Physician, 71(3), 515-522.

Sprung, C. L., Maia, P., Bulow, H. H., Ricou, B., Armaganidis, A., Baras, M., . . . Ethicus Study Group. (2007). The importance of religious affiliation and culture on end-of-life decisions in european intensive care units. Intensive Care Medicine, 33(10), 1732-1739. doi:10.1007/s00134-007-0693-0

Thrane, S. (2010). Hindu end of life:  death, dying, suffering, and Karma.  Journal of Hospice and Palliative Nursing, 12(6), 337-42. doi: 10.1097/NJH.Ob013e3181f2ff11 

WHOQOL SRPB Group. (2006). A cross-cultural study of spirituality, religion, and personal beliefs as components of quality of life. Social Science & Medicine (2006), 62(6), 1486-1497.

The following books are available in the Lamar Soutter Library or click on the link to get more information about the book.

Culture Clues.  Patient and Family Education Center.  University of Washington Medical Center.  Tip sheets for clinicians.

Kongnetiman, L., Lai, D., and Berg, B. Cultural Competency in Paediatric Palliative Care:  A Literature Review. Alberta Health Services. August 2008

Palliative Care for Culturally and Linguistically Diverse Communities Migrant Information Centre (Eastern Melbourne).  June 2009
This resource considers the social, emotional, physical and spiritual needs of the person who is using palliative care services and their families.  It has been developed to support staff to develop strategies to provide culturally appropriate services specifically for Cambodian, Chinese, Indian, Iranian, Sri Lankan and Vietnamese communities living in the Eastern Metropolitan Region of Melbourne.