Advancing Accessibility and Inclusion in Health Care for People with Disabilities: People with mental, cognitive and physical disabilities often face significant barriers in accessing quality healthcare. These barriers can include inaccessible facilities, lack of trained healthcare providers, and inadequate communication tools. By focusing on the needs of people with disabilities, we can create a more inclusive healthcare system that provides equitable access to quality care.
Disability Experiences: Memoirs, Autobiogrpahies, and Other Personal Narratives by
Disability Experience: Memoirs, Autobiographies, and Other Personal Narratives presents essays on 200 narrative works written by persons with disabilities. The disabilities covered are mostly physical, but psychological/psychiatric conditions, developmental/intellectual impairments, and addiction are also included. While most are written by disabled persons themselves, a small number of biographies and family memoirs (such as those written by parents or spouses) were included when the advisory board felt they were important contributions to communicating the disability experience.
The works date from as early as 1470 to as recent as 2018. While most of the authors are from the US, one-third of the works are by authors from elsewhere around the globe. Care was also given to represent a wide range of other cultures, heritage, and lifestyles, in areas such as religion, sexual orientation, gender identification, color, and other factors that, along with disability, constitute intersectional experiences. At least half the works included represent such at least one diversity factor.
All entries are signed, and each begins with a brief summary of the work and list of key information. The body of each essay provides an overview of the work and the subject¿s life, and discussion of historical and cultural context, themes, and critical reception. All essays have one or two sidebars and a bibliography; half also have a photo.
The work includes a pedagogical piece from the editor that discusses ways the contents can be used in the classroom. This is followed by a three-part thematic outline organizing the entries by disabilities and conditions that are represented in the works; by formats other than autobiography or memoir, such as graphic memoir or poetry; and by other themes, both disability-related and other.
The volume also includes a subject index and a list of other recommended memoirs and anthologies not covered within.
Key Policy Challenges and Opportunities to Improve Care for People with Mental Health and Substance Use Disorders by
Behavioral health and substance use disorders affect approximately 20 percent of the U.S. population. Of those with a substance use disorder, approximately 60 percent also have a mental health disorder. Together, these disorders account for a substantial burden of disability, have been associated with an increased risk of morbidity and mortality from other chronic illnesses, and can be risk factors for incarceration, homelessness, and death by suicide. In addition, they can compromise a person's ability to seek out and afford health care and adhere to treatment recommendations. To explore data, policies, practices, and systems that affect the diagnosis and provision of care for mental health and substance use disorders, the Health and Medicine Division of the National Academies of Sciences, Engineering, and Medicine created the Forum on Mental Health and Substance Use Disorders. The forum activities are expected to advance the discussion and generate potential ideas on ways to address many of the most persistent problems in delivering mental health and substance use services. The inaugural workshop, held October 15-16, 2019, in Washington, DC, explored the key policy challenges that impede efforts to improve care for those individuals with mental health and substance use disorders. This publication summarizes the presentations and discussion of the workshop.
Medical Management of Vulnerable and Underserved Patients: Principles, Practice, Populations, Second Edition by
The leading reference and text on caring for underserved patients and those with highly unique health requirements - updated and expanded in full color A Doody's Core Title for 2019! Medical Management of Vulnerable and Underserved Patients: Principles, Practice and Populations, Second Edition is designed to clarify current issues and instruct you in best practices and compliance with legislation, such as the Affordable Care Act, when caring for patients living with chronic diseases in poor and minority populations. How do these laws affect you, your practice, and patient care? Medical Management of Vulnerable and Underserved Patients is ideally suited for clinical and educational programs and policy-oriented institutions concerned with addressing health disparities and caring for the underserved and vulnerable patient. Comprehensive in scope and authored by many of the leading names in the field, the book takes complex concepts and issues and helps you understand them, resulting in a "roadmap" to guide real-world applications and compliance with the terms of the law. Each chapter integrates key concepts, core competencies, and common pitfalls and concludes with useful lists of web resources and stimulating discussion questions. Highlights of the Second Edition:
More Than Ramps by
Nearly twenty percent of Americans live today with some sort of disability, and this number will grow in coming decades as the population ages. Despite this, the U.S. health care system is not set up to provide care comfortably, safely, and efficiently to persons with disabilities. Individuals with disabilities can therefore face significant barriers to obtaining high quality health care. Some barriers result from obvious impediments, such as doors without automatic openers and examining tables that are too high. Other barriers arise from faulty communication between patients and health care professionals, including misconceptions among clinicians about the daily lives, preferences, values, and abilities of persons with disabilities. Yet additional barriers relate to health insurance limits on items and services essential to maximizing health and independence. This book examines the health care experiences of persons who are blind, deaf, hard of hearing, or who have difficulties using their legs, arms, or hands. The book then outlines strategies for overcoming or circumventing barriers to care, starting by just asking persons with disabilities about workable solutions. Creating safe and accessible health care for persons with disabilities will likely benefit everyone at some point. This book has three parts. The first part looks at the historical roots of healthcare access for persons with disabilities in the United States. The second part discusses the current situation and the special challenges for those with disabilities. The third part looks forward to discuss the ways in which healthcare quality and access can improve.
Opportunities for Improving Programs and Services for Children with Disabilities by
Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.
Twister by
The last thing Piedro remembers is diving into the lake on his day off fromwork. Now he lies in a hospital bed with a wheelchair at his side. Casting ashadow from the doorway, his caretaker remarks on "how quickly one gets used tothis kind of thing," as she goes on to empty his catheter bag and to help himinto his wheelchair. Piedro must now deal with a growing mix of fear andpowerlessness that surges within him as he realizes that he will be paralyzedforever; it bursts forth like a twister, "over and over again," until he resignshimself to it. In time, Piedro's feelings of hopelessness are offset by therealization that he can find both love and a degree of independence. With thesupport of his family and friends, he makes his way through rehab and finallygets back to the business of living. Based on his own experiences, RolandBurkart's Twister is a realistic and uplifting narrative that will resonate withanyone who has ever experienced or borne witness to a life upended by calamity.
Purpose: Designed to lift the voices and stories of diverse communities that have been traditionally marginalized
The CTM Series features local and national speakers that present new or partially formed DEI initiatives. This informal venue is designed to spark inquiry and innovation in the DEI space.
All CTM talks focus on the unique perspectives related to the experiences of diverse communities. The series intentionally centers on the narratives of silenced communities and aims to create an educational space for participants to discuss the systemic barriers that impact marginalized groups.
Goal: This series strives to create a community that can discuss, bond, and celebrate the unique needs, and concerns associated with intersections of identity, including but not limited to race, ethnicity, gender identity & expression, sexual orientation, socioeconomic status, and ability.